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Sickle cell disease (SCD) is an inherited, lifelong chronic disorder affecting nearly 100,000 Americans and a growing global health problem that will touch nearly 30 percent more people globally in the next three decades. Though new approaches to managing SCD have led to improvements in diagnosis and supportive care, people living with the disease still have severe complications to overcome. Many are unable to access quality care and are limited by a lack of effective treatment options.
In an effort to identify unmet medical needs for people with SCD, the American Society of Hematology (ASH), along with other groups, issued the State of Sickle Cell Disease: 2016 Report, evaluating the disease in four priority areas — access to care, training and professional education, research and clinical trials, and global health. The report shows that significant improvements are needed across all areas and that, though patients are living longer, the system of care needs to change to ensure a better quality of life. To address these challenges, ASH launched the Sickle Cell Disease Coalition along with more than 20 other organizations who are issuing a call to action that will amplify the voice of the SCD community, promote SCD awareness, and transform SCD care both in the United States and around the globe.
To view the multimedia release go to:
http://www.multivu.com/players/English/7903251-american-society-hematology-sickle-cell-coalition/
On 26 – 28 October Skolkovo Technopark hosted the 5th annual Open Innovations Forum. This event was important for developing Russia’s innovative ecosystem. This Forum welcomed more than 13 500 guests from more than 100 countries, 600 speakers, hosted more than 100 sessions. More than 300 investors and venture funds, about 1 200 representatives of innovative structures, more than 2 000 corporate representatives, and 3 000 startups took part in the Forum.
This year for three days Skolkovo Technopark became a working space for open discussions, associate meetings and a search for partners and investors. The Forum’s success was the direct result of the number of meetings held and agreements achieved – above 700 negotiations were conducted on the venue, more 50 partner agreements were signed.
Dmitry Medvedev, Prime Minister of Russia, said: “This year, the Forum is to take place at Skolkovo Technopark, which is considered to be the largest technopark in Europe. It is a clear example of a successful start-up that helps to implement interesting projects and generate original ideas. I am sure that participants of the Open Innovations Forum felt the unique atmosphere of a joint intention to get new knowledge.”
To view the multimedia release go to:
http://www.multivu.com/players/uk/7964951-open-innovations-forum-2016/
Professional Photographers of America (PPA) will launch its international Super 1 Day photo workshops on Monday, October 6. For two weeks, professional and aspiring professional photographers from around the world may participate in one-day intensive training workshops. The event runs through October 20 in over 100 cities throughout the U.S., Canada, Korea and Australia and is open to both PPA members and non-members.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7319451-professional-photographers-of-america-ppa-super-1-day-photo-workshop/
Adolescents and young adults with a severe inherited immunodeficiency disorder improved following treatment with novel gene therapy developed at St. Jude Children’s Research Hospital and at the National Institute of Allergy and Infectious Diseases (NIAID), part of the National Institutes of Health. The results of this study appear today in the journal Science Translational Medicine.
The study involved five males with X-linked severe combined immunodeficiency disease (SCID-X1), also known as “Bubble Boy” disease, who were all treated at NIAID. This inherited disorder involves a mutation in the IL2RG gene that affects males and occurs in 1 of every 50,000 to 100,000 live births, leaving them with little to no immune protection.
To view the multimedia release go to:
http://www.multivu.com/players/English/7808651-st-jude-gene-therapy-results/
In early July, leading vitamin and supplement brand Sundown Naturals® completed their three month cross-country Sundown Naturals® 100% Goodness Tour. The 100% Goodness Tour, which celebrated the simple goodness in life, kicked-off in April at the WTHR Health EXPO in Indianapolis, IN and made its final stop in Dallas, TX with 23 stops in between.
At each location, attendees sampled Sundown Naturals® Gummies and were invited to #sharethegoodness and contribute to a cross-country photo mural displaying what makes them feel good, whether that be a beautiful day, friends, a meal or a pet. A team of “Goodness Gurus” were also on-site sharing ways to focus on wellness through nutrition, fitness, mindfulness or cultivating joy in daily life.
To view the multimedia release go to:
http://www.multivu.com/players/English/7843151-sundown-naturals-goodness-tour/
Living with type 1 diabetes comes with many unique challenges in all stages of life. For parents of children with the condition, financial, medical and emotional worries can be overwhelming. To help support people with diabetes and those who love them, Lilly Diabetes today announced it will donate $94,000 to the American Diabetes Association (Association) Campership program and $100,000 to the Diabetes Scholars Foundation (Foundation).
To view the multimedia release go to:
http://www.multivu.com/players/English/8004851-lilly-diabetes-scholarship-donations/
The European Head and Neck Society (EHNS) today announces European-wide ‘Early Diagnosis Days’ taking place on Wednesday 24 September as part of this year’s Head and Neck Cancer Awareness Week (22–26 September). This follows the success of the 2013 campaign, where nearly 100 ‘Early Diagnosis Days’ took place. More than 5,000 patients were seen by a healthcare provider in 1 day, resulting in a referral rate of approximately 5% and multiple diagnoses of the disease.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/72762527-EHNS-early-diagnosis-days/
The American Cancer Society and the CVS Health Foundation today awarded grants to 20 U.S. colleges and universities as part of their Tobacco-Free Generation Campus Initiative (TFGCI), a $3.6 million multi-year program intended to accelerate and expand the adoption and implementation of 100 percent smoke- and tobacco-free campus policies. The announcement coincides this week with the American Cancer Society Great American Smokeout.
The Tobacco-Free Generation Campus Initiative is part of Be The First, CVS Health's five-year, $50 million initiative that supports education, advocacy, tobacco control, and healthy behavior programming to help deliver the nation’s first tobacco-free generation. CVS Health has set actionable and measurable goals for Be The First, including a doubling of the number of tobacco-free college and university campuses in the United States.
To view the multimedia release go to:
http://www.multivu.com/players/English/7963951-cvs-health-tobacco-free-campus/
