Today on Rare Disease Day, My Life, Our Future, a national program founded by leaders in the bleeding disorder community, including Bloodworks Northwest, the American Thrombosis and Hemostasis Network, the National Hemophilia Foundation and Bioverativ Inc., opened the largest research repository of its kind in the world to scientists. The My Life, Our Future Research Repository is a collection of genetic data and blood samples that are linked to phenotypic data from more than 5,000 people in the U.S. with hemophilia, a rare disorder that impairs the ability of one’s blood to clot. The My Life, Our Future Research Repository will allow researchers to advance the scientific understanding of the disorder, including genetic differences that affect bleeding severity and reaction to certain treatments.
To view the multimedia release go to:
https://www.multivu.com/players/English/8046151-national-hemophilia-foundation-my-life-our-future/
In today’s always-on world, people are more digitally-connected than ever before – yet less connected to one another in meaningful ways. That’s why Murad®, the pioneering clinical skincare brand, is launching the EyesUp Campaign, a new initiative designed to educate people about the danger of digital-only relationships and the power of real-world human connection. Through the campaign, Murad is encouraging people around the world to go “EyesUp” and connect with one another in real life.
Renowned as the “Father of Internal Skincare,” Dr. Murad’s groundbreaking work and research over the past decade has centered on helping people cope with Cultural Stress™, or the stress of modern living. The hallmarks of Cultural Stress include digital dependency, the inability to disconnect from work, and lowered self-esteem due to increased social expectations.
To view the multimedia release go to:
https://www.multivu.com/players/English/7833456-murad-skincare-eyesup-campaign/
St. Jude Children’s Research Hospital is naming the institution’s principal research tower after Donald Pinkel, M.D., whose legacy of driving progress toward advancing cures for pediatric catastrophic diseases continues at the institution today.
When St. Jude was established 55 years ago, Pinkel, the hospital’s first medical director, committed to finding cures for childhood cancer, leading to groundbreaking treatments that saved countless children’s lives. Many of these cancers were deemed incurable prior to Pinkel’s research, but his distinct approach to eradicating diseases established a model for how cancers could be treated.
To view the multimedia release go to:
https://www.multivu.com/players/English/7924752-st-jude-childrens-research-hospital-donald-pinkel-tower/
When a life-changing diagnosis brings moments of uneasiness, a glimmer of hope can make all the difference in bringing solace. As hope comes in many forms, Extended Stay America® hotels, the nation’s largest owner operated hotelier, announced today the launch of the brand’s latest initiative in their continued support for the fight against cancer – the “Give Hope” program. A natural evolution of Extended Stay America’s partnership with the American Cancer Society, the “Give Hope” program provides a platform to raise awareness and funds for pediatric cancer research.
To view the multimedia release go to:
https://www.multivu.com/players/English/8060751-extended-stay-america-give-hope-cancer-research/
In new research from U by Kotex®, three in five women surveyed stated it is more difficult to exercise during their period and the majority reported opting for less challenging workouts.
U by Kotex® is hoping to rid barriers with the launch of its latest innovation – U by Kotex® FITNESS. To meet the needs of people experiencing a period, the brand is introducing three new product offerings, including:
• NEW U by Kotex Fitness Tampons with a plastic FITPAK* so you can protect your protection. Durable, compact, and discreet, FITPAK* is designed to keep your tampons ready for use, wherever you stash them.
• NEW U by Kotex Fitness Liners have DualFlex Zones* that move with you to keep protection where you need it.
• NEW U by Kotex Fitness Ultra Thin Pads are shaped to fit and flex with your body, to stay in place so you don’t have to.
To view the multimedia release go to:
https://www.multivu.com/players/English/8073651-u-by-kotex-findyourfitness/
Volvo Cars, the premium carmaker, has announced a close partnership with Google, one of the world’s largest technology companies, to develop the next generation of its award-winning in-car infotainment and connectivity solution based on Android, offering access to a wide array of apps and services. It will launch on new Volvo models within two years.
The partnership promises to revolutionise how Volvo customers engage and interact with their cars. The large catalogue of popular Android apps – developed by Google, Volvo, or third party app developers – will offer connected and predictive services in and around the car.
“We are making an important strategic step with the Google partnership. Google’s platform and services will enhance the user experience by enabling more personalisation possibilities, while Android will offer increased flexibility from a development perspective,” said Henrik Green, Senior Vice President Research & Development at Volvo Car Group.
To view the multimedia release go to:
https://www.multivu.com/players/uk/8103651-volvo-cars-google-android-connected/
St. Jude Children’s Research Hospital patients who completed kindergarten during their treatment for pediatric cancers celebrated at a graduation ceremony.
For the 10th straight year, St. Jude honored 14 patients from around the United States who completed kindergarten while battling life-threatening illnesses like leukemia and brain tumors. Dozens of families and St. Jude doctors, nurses, and staff cheered for the young students, who completed kindergarten in the St. Jude School Program by Chili’s.
Each year, the school program commemorates students who have completed kindergarten coursework with a special ceremony. The children present a song for the families and St. Jude staff, receive their diplomas and celebrate the milestone with their fellow students.
To view the multimedia release go to:
https://www.multivu.com/players/English/7924755-st-jude-celebrates-kindergarten-graduation/
Changes in the treatment of pediatric cancer over recent decades have translated to a reduced risk of serious, long-term late health effects of cancer therapy. This is according to the latest analysis from the Childhood Cancer Survivor Study (CCSS), a National Cancer Institute-funded resource for late-effects research, led by investigators at St. Jude Children’s Research Hospital.
“This is the first comprehensive study to demonstrate how changes in treatments over time have impacted the occurrence of late effects experienced by childhood cancer survivors,” said Todd Gibson, Ph.D., assistant member of the Department of Epidemiology and Cancer Control at St. Jude. “We found the 15-year cumulative incidence of people reporting at least one severe health condition decreased from 12.7 percent among childhood cancer survivors diagnosed in the 1970s to 10.1 percent for those diagnosed in the 1980s to 8.8 percent in the 1990s–a statistically significant decline.”
To view the multimedia release go to:
https://www.multivu.com/players/English/7924756-st-jude-childhood-cancer-survivorship-asco-2017/
Summit Homes, a Berkshire Hathaway subsidiary through Clayton Properties Group, presented St. Jude Children’s Research Hospital representatives a check for $718,000 following the sale of the builder’s 2017 St. Jude Dream Home Showplace.
Summit Homes, the largest new home builder in Kansas City, built the 2017 St. Jude Dream Home Showplace as an extension of the St. Jude Dream Home® Giveaway Program, to support children battling cancer and other catastrophic diseases. The builder pledged 100% of proceeds from the sale of the home to as a donation for the research hospital.
To view the multimedia release go to:
https://www.multivu.com/players/English/8011654-clayton-summit-homes-st-jude-dream-home-2017/
Cancer takes more children’s lives than any other disease in the U.S., and nearly 25,000 kids will be diagnosed during the month of September alone. As the largest private funder of childhood cancer research grants, the St. Baldrick’s Foundation is on a mission to take childhood back from cancer by raising critical dollars for lifesaving research and spreading awareness about the harsh realities of childhood cancer.
This September, in recognition of Childhood Cancer Awareness Month, St. Baldrick’s will show how the research it funds is accelerating the development of new therapies and cures for kids with cancer everywhere. The Foundation will also share stories of kids affected by cancer – kids like David and Hazel who were both diagnosed with neuroblastoma, but faced two different outcomes.
To view the multimedia release go to:
https://www.multivu.com/players/English/7916553-st-baldricks-childhood-cancer-awareness-month/
In an effort to improve outcomes for patients with some of the deadliest childhood cancers, St. Jude Children’s Research Hospital scientists have created the world’s largest collection of pediatric solid tumor samples, drug-sensitivity data and related information and have made the resource available at no charge to the global scientific community.
St. Jude and the Howard Hughes Medical Institute collaborated to create the resource, known as the Childhood Solid Tumor Network. The work is reported today as an advance online publication in the scientific journal Nature.
“Survival rates for children with recurrent solid tumors have not improved significantly in more than 20 years and remain below 30 percent,” said corresponding author Michael Dyer, Ph.D., chair of the St. Jude Department of Developmental Neurobiology and a Howard Hughes Medical Institute investigator. “This research will change that by promoting scientific collaboration to leverage the efforts of researchers worldwide to advance understanding and ultimately treatment of pediatric solid tumors.”
To view the multimedia release go to:
https://www.multivu.com/players/English/8121952-st-jude-childrens-childhood-solid-tumor-network/
In the noisy, contradictory health-help arena, Food & Fitness After 50 gives readers simple and straightforward tools to eat well, move well and be well after 50.
The new title from the Academy of Nutrition and Dietetics counters ever-changing nutrition and fitness advice by untangling myths, answering vexing questions and simplifying science and research so readers can chart a clear, personalized pathway to enhanced health.
“Many people fall into habits that seem hard to change, but with a bit of planning and the realization that health matters, anyone can make meaningful changes to eat well, move well and be well at any age,” according to Food & Fitness After 50 co-authors Christine Rosenbloom, PhD, RDN, FAND, and Bob Murray, PhD, FACSM.
Divided into three sections that focus on diet, exercise and overall wellness, Food & Fitness After 50 translates scientific research into simple, actionable steps to control food choices and fitness strategies for adults in their 50s, 60s, 70s and beyond.
To view the multimedia release go to:
https://www.multivu.com/players/English/8191551-academy-of-nutrition-and-dietetics-food-fitness-book/
