Today on Rare Disease Day, My Life, Our Future, a national program founded by leaders in the bleeding disorder community, including Bloodworks Northwest, the American Thrombosis and Hemostasis Network, the National Hemophilia Foundation and Bioverativ Inc., opened the largest research repository of its kind in the world to scientists. The My Life, Our Future Research Repository is a collection of genetic data and blood samples that are linked to phenotypic data from more than 5,000 people in the U.S. with hemophilia, a rare disorder that impairs the ability of one’s blood to clot. The My Life, Our Future Research Repository will allow researchers to advance the scientific understanding of the disorder, including genetic differences that affect bleeding severity and reaction to certain treatments.
To view the multimedia release go to:
https://www.multivu.com/players/English/8046151-national-hemophilia-foundation-my-life-our-future/
With the tap of the JOIFUL app, consumers in the Los Angeles area can enjoy mobile salon and spa treatments in the comfort of their home, office or hotel. Beauty industry Artists are at the ready to provide a suite of beauty and wellness treatments including: blowouts; hair styling; men’s haircuts and hot shaves; a variety of massage options; facials; manicures/pedicures as well as specialty services like waxing treatments.
JOIFUL was created to make routine beauty services accessible to time-compressed people who often skip these rituals due to their busy schedules. It’s the only on-demand beauty app with a full suite of salon and spa services – with no look books to limit personal style. Mobile beauty customers can book their treatment, track their Artist in transit and pay with credit card or Apple Pay. Artists will arrive in 60 minutes and gratuity is included in the affordable luxury pricing.
To view the multimedia release go to:
http://www.multivu.com/players/English/8026051-joiful-on-demand-beauty-and-wellness-app/
Going on the offensive against one of the most daunting challenges in cancer, The Leukemia & Lymphoma Society (LLS) today announced the launch of a groundbreaking, collaborative clinical trial for acute myeloid leukemia (AML), a deadly disease which has seen few improvements in treatments in more than 40 years.
Beat AML was announced yesterday by Vice President Biden, along with many new, Moonshot inspired initiatives across industry, non-profit and government.
AML is the most lethal of the blood cancers, which together are the third leading cause of cancer deaths in the U.S.; AML is responsible for more than 10,000 deaths each year. Despite advances in treating other blood cancers, the standard of treatment for AML – a combination of toxic chemotherapies – has remained the same for more than 40 years. Overall prognosis remains poor, with a five-year survival rate below 20 percent for patients over age 60.
To view the multimedia release go to:
http://www.multivu.com/players/English/7554854-lls-beat-aml-acute-myeloid-leukemia/
University of St. Augustine for Health Sciences (USAHS), a leading graduate institution that emphasizes health and rehabilitative sciences education through innovative classroom education, is pleased to announce the installation of SafeGait 360° Balance and Mobility Trainer® on its Austin, Texas campus. The device, which was designed in collaboration with experts in physical therapy (PT) and occupational therapy (OT), works to mitigate the risk of injury from falls, protecting both the patient and therapist. In addition, SafeGait 360°’s dynamic fall protection (DFP) distinguishes between a patient’s intentional downward movement and when a patient is actually falling, which allows therapists to easily modify fall protection sensitivity to accommodate and challenge patients at varying stages of independence.
USAHS is one of the first higher education institutions in the nation to install this innovative body-weight support and fall protection system. In addition to conducting ground breaking research with patients and students, faculty members with extensive experience in body-weight treatments aim to open a clinic which will provide new treatment options to patients in the Austin community, and will begin seeing patients in October of this year.
To view the multimedia release go to:
http://www.multivu.com/players/English/7743851-usahs-safegait-360-physical-therapy/
Team In Training. Light The Night. Man & Woman of the Year. Student Series. Leukemia Cup Regatta. More than 13 million participants in these popular fundraising campaigns last year alone helped The Leukemia & Lymphoma Society (LLS) invest more than $1 billion in research to advance lifesaving treatments and cures for blood cancer patients.
For Blood Cancer Awareness Month this September, LLS is reminding us that despite progress, much work still needs to be done to save more lives. More than 1.2 million people in the U.S. are living with or in remission from a blood cancer. Leukemia causes more deaths than any other cancer among children, adolescents and adults younger than 20 years. Leukemia, lymphoma and myeloma are expected to cause the deaths of an estimated 58,320 people in the U.S. in 2016.
To view the multimedia release go to:
http://www.multivu.com/players/English/7554853-lls-blood-cancer-awareness-month/
The website www.MyPerfectDish.eu aims to help people with Parkinson’s, their relatives and caregivers in taking care of their nutritional requirements in order to help them enjoy tasty food that meets their dietary needs.
The website is endorsed by the European Parkinson’s Disease Association (EPDA) and sponsored by Zambon, and has been designed as an easy-to-use scientific information tool so people living with Parkinson’s can be confident that what they are reading is reliable.
“As the only European Parkinson’s umbrella organisation, the EPDA is very proud to endorse this project, which is based on solid scientific and medical grounds,” explains EPDA president Knut-Johan Onarheim. “A balanced and varied diet is important for everyone but it is even more important for people living with Parkinson’s disease because the right food intake can improve their quality of life as well as the effects of therapeutic treatments”.
“Zambon is very proud of having supported this project, which will help people with Parkinson’s and all those involved in the management of the disease. We are strongly committed to drive research and develop solutions to help patients in all their needs“. states Elena Zambon, President of Zambon.
To view the multimedia release go to:
http://www.multivu.com/players/uk/7864251-parkinsons-diet-online-resource/
Solta Medical's novel addition to its aesthetic device solutions, the Clear + Brilliant pélo™ laser, offers personalized results with groundbreaking laser hair removal [LHR] technology to make it fast and simple with minimal pain for anyone to get rid of unwanted hair.
The Clear + Brilliant pélo™ laser provides a highly effective treatment in a short amount of time due to its innovative linear scanning technology and the largest treatment window in the market. A full back takes only 8-12 minutes, and full legs take about 36 minutes. After 5-6 treatments, patients can see the results they want, and still have money in their pocket for the long run.
Each treatment can be customized depending on the individual's needs, and patient comfort is enhanced by minimizing pain on contact through a sapphire glass handpiece that quickly chills to 0°C. So patients and physicians can rest easy that their individual needs are met.
To view the multimedia release go to:
http://www.multivu.com/players/English/7621831-clear-brilliant-pelo-laser-hair-removal/
Over 80% of Americans want to spend their last days at home, with friends and family. Yet, despite these desires, 75% of Americans will spend their last days in a hospital room. Many people will spend hours each day getting painful and often useless treatments and tests, and be asked to take dozens of debilitating drugs. For many, the cure is worse than the disease. This often has negative and lasting effects on family and friends who are often left with feelings of guilt and regret for years to come.
Hospice Support Fund is a 501(c)(3) non-profit organization dedicated to promoting end of life care at home rather than in a hospital so patients can spend their last days in dignity and peace, pain-free in familiar, comfortable surroundings with friends and family.
To view the multimedia release go to:
http://www.multivu.com/players/English/7785451-hospice-support-fund-end-of-life-care-psa/
GENESIS has unveiled its striking ‘New York Concept’ luxury sports sedan at the New York International Auto Show. The New York Concept hints at future GENESIS design direction with its expressive and refined ‘Athletic Elegance,’ first seen in the Vision G concept and in production form with the GENESIS G90 premium luxury sedan.
Acknowledging the GENESIS brand’s sporty and agile nature, the hybrid concept generates 245ps and 36.0 kgf.m of torque from its 2.0 GDi powertrain coupled with an 8-speed automatic transmission. The advanced technological features and precise design language of the concept emphasize key aspects of Korean culture, while elevating the value and perception of the GENESIS brand.
The exterior of the New York Concept presents an elegant interpretation of a luxurious performance vehicle, defined by well-balanced proportions and refined surface treatments. Inside, the concept car combines advanced technology with absolute luxury, contrasting innovative electronics against finely-crafted materials.
To view the multimedia release go to:
http://www.multivu.com/players/English/7506054-hyundai-genesis-hybrid-sports-sedan-nyias/
The St. Baldrick’s Foundation, a volunteer-powered charity dedicated to funding childhood cancer research, announces its Kids Are Special: Let’s Treat Them That Way national campaign. Focused on celebrating kids and giving them the happy childhoods they deserve, the campaign highlights the need for finding treatments that are specifically designed for kids with cancer.
With this bold new initiative, St. Baldrick’s looks to change the narrative around pediatric cancers, by showing kids as their truest selves – fun-loving, carefree, refreshingly honest, and always a little goofy. St. Baldrick’s puts the emphasis back on kids, while disempowering the label of “cancer.” All communication is strategically designed to remind us all that as adults we have the power to give kids happy childhoods free from cancer by helping to fund the best research worldwide. The campaign includes TV, print, radio, digital, and billboard placements featuring real kids doing kid-like things; from playing with their food to getting caught with paint on their faces, all with the message: Kids Are Special: Let’s Treat Them That Way.
To view the multimedia release go to:
http://www.multivu.com/players/English/7610752-st-baldricks-kids-are-special/
Following FDA approval of the AspireSR® generator for the VNS Therapy® system in June 2015, more than a thousand patients with drug-resistant epilepsy across the United States have received this new treatment option. Many of these patients are experiencing benefits which have positively impacted their lives – and are sharing their stories during Epilepsy Awareness Month with the hope of encouraging others to seek new treatments for drug-resistant epilepsy. Numerous hospitals nationwide have begun providing the AspireSR device to patients with drug-resistant epilepsy – a condition that affects as many as one-third of people with epilepsy, causing them to have seizures in spite of treatment with antiepileptic medications.
The VNS Therapy system is a minimally invasive option in which a medical device is placed under the skin in the upper chest area during an outpatient procedure. The device sends mild electrical pulses through the vagus nerve to areas of the brain known to be associated with seizures. The new AspireSR generator takes the VNS Therapy technology a step further – detecting relative heart-rate increases that are often associated with seizures in people with epilepsy and providing responsive stimulation in an attempt to stop and shorten seizures and improve recovery.
To view the multimedia release go to:
http://www.multivu.com/players/English/7651751-livanova-aspiresr-treatment/
When a serious illness enters a family's life, there are many questions to ask and decisions to make. It is important to answer these questions quickly. The process can seem overwhelming. However, hospice care can be a wonderful resource for information about symptom management and comfort care. Hospice care professionals are available to help assess goals, pain management and care options during the decision-making process.
Are your symptoms minimal or moderate? Are these symptoms just starting to affect your life? If you want to continue treatment but also need comfort and symptom management, palliative care (often called comfort care) maybe an option. Palliative care is patient and family-centered care that optimizes quality of life by anticipating, preventing and treating suffering. Palliative care specialists address the physical, intellectual, emotional, social, and spiritual needs of patients and families, making sure they have access to all the information about the disease progression and the choices ahead. A patient can receive palliative care in conjunction with other treatments or therapies.
To view the multimedia release go to:
http://www.multivu.com/players/English/7429131-moments-of-life-by-hospice/
