Under the leadership of the National Organization for Rare Disorders (NORD), the primary organization in the U.S. representing people with rare diseases, millions of Americans will gather tomorrow to observe the 5th annual Rare Disease Day. This international observance unites people around the globe to focus attention on the estimated 300 to 350 million patients worldwide afflicted with rare diseases and to recognize that their needs are a global public health concern. In the U.S., a rare disease is one that affects fewer than 200,000 Americans.
To view Multimedia News Release, go to http://www.multivu.com/mnr/60507-nord-rare-disease-day
Jerome Bettis and Robin Miller are teaming up with Sanofi US to raise awareness of life-threatening allergic reactions (anaphylaxis) and spread the word that Auvi-Q™ (epinephrine injection, USP) is now available by prescription in pharmacies nationwide. Bettis, who is allergic to shellfish, and Miller, who is allergic to eggs, hope to help educate adults and caregivers of children at risk for severe allergic reactions.
Auvi-Q is the first-and-only epinephrine auto-injector with audio and visual cues for the emergency treatment of life-threatening allergic reactions in people who are at risk for or have a history of anaphylaxis. The size and shape of a credit card and the thickness of a smart phone, Auvi-Q is a breakthrough in epinephrine auto-injector design that talks patients and caregivers step-by-step through the injection process.
To view Multimedia News Release, go to http://www.multivu.com/mnr/59439-auvi-q-epinephrine-injection-usp-now-available-by-prescription-in-u-s
Novo Nordisk, a world leader in diabetes care, today kicked off the first NovoLog® Community Star contest. As part of the program, type 2 diabetes patients successfully managing their blood sugar with NovoLog® (insulin aspart [rDNA origin] injection) are invited to visit www.novolog.com and tell us how they’re giving back to their local communities.
Now through March 15, NovoLog® patients can submit their story and photo online for the chance to be crowned a NovoLog® Community Star. Finalists will be selected by a panel of judges, and each will receive a $5,000 donation to a local diabetes-related organization of their choice. One grand prize winner will also receive a one-year online subscription to Weight Watchers® to help with their diabetes management.
To view Multimedia News Release, go to http://www.multivu.com/mnr/59947-novo-nordisk-first-novolog-community-star-contest-type-2-diabetes-patients
AbbVie (NYSE:ABBV) today marks its launch as an independent biopharmaceutical company, with employees from more than 40 countries and patients joining AbbVie leaders as they ring the first opening bell of 2013 at the New York Stock Exchange.
With a rich, 125-year heritage of developing pharmaceuticals, AbbVie combines the focus and passion of a leading-edge biotech with the expertise and structure of a long-established pharmaceutical leader. A global enterprise that serves patients in more than 170 countries, AbbVie launches with an estimated $18 billion in annual revenues and a strong commitment to creating shareholder value through long-term growth potential and the continuation of the company’s history of shareholder dividends.
To view Multimedia News Release, go to http://www.multivu.com/mnr/59757-abbvie-celebrates-launch-as-new-biopharmaceutical-company
By reprogramming a 7–year–old girl’s own immune cells to attack an aggressive form of childhood leukemia, a pediatric oncologist has achieved a complete response in his patient, who faced grim prospects when she relapsed after conventional treatment. The innovative experimental therapy used bioengineered T cells, custom–designed to multiply rapidly in the patient, and then destroy leukemia cells. After the treatment, the child’s doctors found that she had no evidence of cancer.
To view Multimedia News Release, go to http://www.multivu.com/mnr/50777-chop-engineered-immune-t-cell-therapy-anticancer-effect-in-children
ZapBoomBang Studios releases its inaugural project today: an original song on iTunes that was created in partnership with a local nonprofit, a GRAMMY- winning producer, and a handful of award-winning artists. It’s Out There Waiting will be sold on iTunes for $1.99 with a companion digital booklet about the making of the song. In addition, the It’s Out There Waiting music video can be purchased on iTunes for $1.99. All proceeds from iTunes sales will be donated to the children’s nonprofit Purple Songs Can Fly, who co-created the single. The song and digital booklet can be purchased at http://itunes.apple.com/us/album/its-out-there-waiting-feat./id571241651?i=571241851. The It’s Out There Waiting music video can be found at http://itunes.apple.com/us/music-video/its-out-there-waiting-music/id573793381.
To view Multimedia News Release, go to http://www.multivu.com/mnr/58824-zapboombang-purple-songs-can-fly-song-to-benefit-children-with-cancer
Joerns Healthcare has launched the Dolphin Fluid Immersion Simulation® system that more effectively prevents and treats pressure-related injuries than other surfaces. This patented technology simulates the effect of floating in water for patients on hospital beds, stretchers, and in wheel chairs. The Dolphin technology continually adjusts to the patient’s body, promoting tissue perfusion and oxygenation, and minimizing injury related to compromised blood flow. The Dolphin is also proven to accelerate healing of advanced stage or multiple pressure ulcers, muscle flaps, skin grafts, burns and other wound conditions.
To view Multimedia News Release, go to http://www.multivu.com/mnr/58463-joerns-dolphin-fluid-immersion-simulation-system-pressure-related-injuries
InSightec Ltd, the leader in magnetic resonance imaging (MRI)-guided Focused Ultrasound therapy, announced that the U.S. Food and Drug Administration (FDA) has approved ExAblate® MRI-guided focused ultrasound as a therapy to treat pain from bone metastases in patients who do not respond or cannot undergo radiation treatment for their pain. This is the second FDA approval for ExAblate, which has been used widely since it was approved in 2004 as a non-invasive, outpatient, therapy for uterine fibroids.
To view Multimedia News Release, go to http://www.multivu.com/mnr/56632-insightec-fda-approves-exablate
The quaint Irish village of Ballybucklebo is full of colorful characters and eccentric patients that two country doctors must tend to, but with love in the air each doctor has their hands, and hearts, full. NY Times bestselling author Patrick Taylor transports us back to the Ireland of the 1960s with his beloved Irish Country Books series. Find out more at http://us.macmillan.com/anirishcountrywedding/PatrickTaylor. Fiction, historical fiction
In support of American Diabetes Month®, Colgate Total® is working with the American Diabetes Association to educate patients about diabetes and gum disease and to empower them to help take charge of their diabetes.
A recent survey conducted by Harris Interactive on behalf of Colgate Total® about oral health reveals a lack of awareness about the various health issues associated with diabetes. More than one third of all respondents (36%) are not aware of the link between diabetes and oral health and are less likely to associate oral health issues with diabetes than almost all other health conditions related to diabetes. More than half (54%) report one or more symptoms of gum disease – yet 67% do not discuss their oral health with their doctor.
To view Multimedia News Release, go to http://www.multivu.com/mnr/58614-colgate-total-american-diabetes-association-oral-health-and-diabetes
The European Parkinson’s Disease Association (EPDA) has launched the third and final booklet in its Life with Parkinson’s series. This latest edition concludes a four-year awareness campaign, which aims to highlight the lack of understanding and knowledge concerning Parkinson’s that exists throughout Europe today. The booklet’s launch, in Amsterdam, the Netherlands, was one of the many activities in a weekend dedicated to celebrating the organisation’s 20th anniversary year and its commitment to improving the lives of people with Parkinson’s (PwPs).
To view Multimedia News Release, go to http://www.multivu.com/mnr/56619-epda-launches-life-with-parkinsons-booklet
When Kayla Dehnert tells friends and family in Northern California about life as a St. Jude Children’s Research Hospital patient, she pulls out a string of beads taller than she is.
Kayla, 8, of Novato, Calif., is one of hundreds of St. Jude patients who have participated in the hospital’s Legacy Bead program since its launch in 2009. The program offers patients and their families a tangible way to illustrate their journeys using 55 glass beads as unique as the children who collect them. Patients receive vivid green cylindrical beads for blood transfusions; sapphire round beads for lumbar punctures; tear-drop beads in assorted colors for homesickness; and blue, triangle-shaped beads for clinic visits. Other beads mark triumphs such as the completion of radiation or chemotherapy or challenges ranging from cancer’s return to the death of a friend.
To view Multimedia News Release, go to http://www.multivu.com/mnr/58137-st-jude-legacy-bead-program-treatment-milestones-for-children
