Today, the Pharmaceutical Research and Manufacturers of America (PhRMA) released a new report, “A Decade of Innovation in Rare Diseases,” to document the significant progress made in the last 10 years in understanding a broad range of rare diseases and translating this knowledge into groundbreaking therapies for a variety of patient populations.
The report illustrates that more than 230 new medicines to treat rare or “orphan” diseases were approved by the U.S. Food and Drug Administration (FDA) in the last decade, and there are currently more than 450 orphan drugs in development.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7350554-phrma-report-innovation-rare-diseases/
The Crohn’s & Colitis Foundation of America (CCFA) is collaborating with the University of North Carolina School of Medicine (UNC) to create a research partnership between patients with inflammatory bowel disease (IBD) and the scientific community. CCFA Partners is a “patient-powered research network” for Crohn’s disease and ulcerative colitis (collectively known as IBD) that uses state-of-the-art bioinformatics to engage and gather information from patients that researchers can study and analyze along with clinical and other patient-generated data.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7449851-crohn-s-colitis-foundation-ccfa-ibd/
Following years of trying to expand their family, Lisa and James Park of Raleigh, NC were named the winning family in Ferring Pharmaceuticals’ 2014 Heart to Heart Video Contest. This marks the tenth year Ferring has provided educational grants through patient contests, giving parents who have struggled with infertility the chance to win thousands of dollars for their child’s education by sharing their story.
Lisa and James’ rollercoaster journey to parenthood included multiple rounds of in vitro fertilization (IVF), intrauterine insemination (IUI) and a frozen embryo transfer. They hope that by sharing their story and video, they can help raise awareness about infertility and provide hope for others facing similar struggles. You can view Park family’s full video at www.hearttoheartcontest.com.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7444651-ferring-pharmaceuticals-heart-to-heart/
On the eve of World Cancer Day 2015, amidst the ongoing cost-of-cancer-care debate, PACE (Patient Access to Cancer care Excellence), a Lilly Oncology initiative, is launching the PACE Continuous Innovation Indicators™ (CII). CII is the first evidence-based, customizable online tool to review progress against cancer over time—initially covering 12 cancer types. The purpose of the tool is to inform public policy reforms and other efforts to accelerate continuous innovation against cancer.
“We have seen tremendous progress in cancer treatment and care during the past decades, and continuous innovation, with one discovery building on another, is responsible for most of it,” said John C. Lechleiter, Ph.D., Chairman, President, and Chief Executive Officer of Eli Lilly and Company (NYSE:LLY). “To keep the momentum going, we need policies that support continuous innovation, but first we need a deeper understanding of the innovations that have occurred, and where we need to be.”
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7419451-eli-lilly-oncology-pace/
I am a dialysis patient, we lost over 10 people in 3 years at my dialysis clinic so I thought I would make a farewell video to show I enjoyed my life in case I die prematurely
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With gout incidence on the rise, an increasing number of medical professionals, across multiple fields of practice, will continue to be exposed to patients who suffer from gout and are seeking an accurate diagnosis and treatment. However, despite the availability of the “Guidelines for the Management of Gout” by the American College of Rheumatology (ACR), there are many inconsistencies in how gout is diagnosed, treated and discussed by medical professionals. Conflicting messages and treatment recommendations can contribute to confusion, and even lack of compliance, on behalf of the patient – particularly when gout is connected with comorbid conditions, such as kidney disease, heart disease or diabetes.
To view the Multimedia News Release, go to http://www.multivu.com/players/English/7362551-gout-uric-acid-education-society-guaes-roundtable-consensus-paper/
In response to the growing need for quality healthcare in Chicago, Northwestern Medicine is proud to announce the opening of a new, one-million square foot outpatient pavilion at 259 E. Erie St. The new pavilion opened on Oct. 13 in the heart of Northwestern Medicine’s downtown medical campus, home to Northwestern Memorial Hospital and Northwestern University Feinberg School of Medicine.
To view the Multimedia News Release, go to: http://www.multivu.com/players/English/7049451-northwestern-medicine-to-open-259-east-erie-patient-pavilion-in-october/
Research shows that patients who don’t consistently follow their regular medication regimen are at risk for death or hospitalization. During American Pharmacists Month in October, American Pharmacists Association (APhA) Foundation is launching the Align My Refills campaign to help patients and caregivers maintain their medication regimen with patient resources and the aid of their local pharmacist.
To view Multimedia News Release, go to: http://www.multivu.com/players/English/7337851-american-pharmacists-association-foundation-align-my-refills-campaign/
The following statement is being issued by Jonathan Schochor, Chairman, Plaintiffs’ Steering Committee, regarding Jane Doe No. 1, et. al. v. Johns Hopkins Hospital, et al., No. 24-C-13-001041.
If you were a patient of, or were treated by Johns Hopkins Hospital gynecologist, Dr. Nikita Levy, you may be eligible for compensation from a class action Settlement
A $190 million dollar proposed Settlement has been reached that offers payments to eligible members of The Levy Settlement Class.
To view the Multimedia News Release, go to: http://www.multivu.com/players/English/7281851-dr-nikita-levy-patients-class-action-settlement/
